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Journal Article > Research

“One-by-one, TB took everything away from me”: A photovoice exploration of stigma in women with drug-resistant tuberculosis in Mumbai

Mahbub T, Mathur T, Isaakidis P, Daftary A
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Abstract
Stigma related to drug-resistant tuberculosis (DR-TB), one of the world's most severe infectious diseases, is a major barrier to TB elimination particularly for women living in settings of gender inequity. Drawing on the participatory action research (PAR) framework of photovoice, we explored lived experiences of DR-TB stigma among nine affected women in Mumbai, India. Consenting women took, shared, and contributed to the critical interpretation of 37 non-identifying images and associated narratives with one another and with PAR researchers. The study surfaced vivid, untold stories of trauma and life-altering encounters with enacted, anticipated, and internal stigma, that were characterized by loss (of self, voice, status, mobility), abuse (mental, social) and deep internal distress (shame, isolation, suffocation, peril). The study also revealed how stigmatized women found means to build resilience and resist the impacts of stigma. We further witnessed the building of their collective resilience through study participation. Photovoice proved to be a uniquely compelling method of data capture and interpretation, with potential to develop meaningful engagement and solidarity among women affected by DR-TB.
Countries
India
Subject Area
antibiotic resistancetuberculosisantimicrobial resistancesocial violence & exclusion
DOI
10.1177/08861099231162582
Published Date
28-Mar-2023
Languages
English
Journal
Affilia
Volume / Issue / Pages
Volume 39, Issue 1, Pages 148-169
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