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'I didn't know so many people cared about me': support for patients who interrupt drug-resistant TB treatment | Journal Article / Research | MSF Science Portal
Journal Article
|Research

'I didn't know so many people cared about me': support for patients who interrupt drug-resistant TB treatment

Snyman L, Venables E, Trivino Duran L, Mohr E, Azevedo VD, Harmans X, Isaakidis P

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Abstract
SETTING
Early interventions for patients who interrupt their treatment for drug-resistant tuberculosis (DR-TB) are rarely reported and assessed. A novel, patient-centred intervention for patients at risk of loss to follow-up (LTFU) from DR-TB treatment was implemented in Khayelitsha, South Africa, in September 2013.

OBJECTIVE
To explore the experiences and perceptions of patients, key support persons, health care workers (HCWs) and programme managers of a patient-centred model.

DESIGN
This was a qualitative study consisting of 18 in-depth interviews with patients, key support persons, HCWs, key informants and one focus group discussion with HCWs, between July and September 2017. Data were coded and thematically analysed.

RESULTS
The model was well perceived and viewed positively by patients, care providers and programme managers. 'Normalisation' and tolerance of occasional treatment interruptions, tracing, tailored management plans and peer support were perceived to be beneficial for retaining patients in care. Although the model was resource-demanding, health workers were convinced that it 'needs to be sustained,' and proposed solutions for its standardisation.

CONCLUSION
An intervention based on early tracing of patients who interrupt treatment, peer-delivered counselling and individualised management plans by a multidisciplinary team was considered a beneficial and acceptable model to support patients at risk of LTFU from DR-TB treatment.

Countries

South Africa

Subject Area

antibiotic resistancetuberculosismodels of careantimicrobial resistance

Languages

English
DOI
10.5588/ijtld.17.0826
Published Date
01 Sep 2018
PubMed ID
30092867
Journal
International Journal of Tuberculosis and Lung Disease
Volume | Issue | Pages
Volume 22, Issue 9, Pages 1023-1030
Issue Date
2018-09-01
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