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“To die is better for me”, social suffering among Syrian refugees at a noncommunicable disease clinic in Jordan: A Qualitative Study | Journal Article / Pre-Print | MSF Science Portal
Journal Article
|Pre-Print

“To die is better for me”, social suffering among Syrian refugees at a noncommunicable disease clinic in Jordan: A Qualitative Study

Ansbro É, Maconick L, Tarawneh M, Ellithy S, Roberts B, Jobanputra K
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Abstract
BACKGROUND
The conflict in Syria has required humanitarian agencies to implement primary-level services for non-communicable diseases (NCDs) in Jordan, given the high NCD burden amongst Syrian refugees; and to integrate mental health and psychosocial support into NCD services given their comorbidity and treatment interactions. However, no studies have explored the mental health needs of Syrian NCD patients. This paper aims to examine the interaction between physical and mental health of patients with NCDs at a Médecins Sans Frontières (MSF) clinic in Irbid, Jordan, in the context of social suffering.

METHODS
This qualitative study involved sixteen semi-structured interviews with Syrian refugee and Jordanian patients and two focus groups with Syrian refugees attending MSF’s NCD services in Irbid, and eighteen semi-structured interviews with MSF clinical, managerial and administrative staff. These were conducted by research staff in August 2017 in Irbid, Amman and via Skype. Thematic analysis was used.

RESULTS
Respondents describe immense suffering and clearly perceived the interconnectedness of their physical wellbeing, mental health and social circumstances, in keeping with Kleinman’s theory of social suffering. There was a ‘disconnect’ between staff and patients’ perceptions of the potential role of the NCD and mental health service in alleviating this suffering. Possible explanations identified included respondent’s low expectations of the ability of the service to impact on the root causes of their suffering, normalisation of distress, the prevailing biomedical view of mental ill-health among national clinicians and patients, and humanitarian actors’ own cultural standpoints.

CONCLUSIONS
NCD patients recognised the psychological dimensions of their illness but may not utilize clinic-based humanitarian mental health and psychosocial support services. Humanitarian agencies must engage with NCD patients to elicit their needs and design culturally relevant services.

Countries

Jordan

Subject Area

displaced populationsnon-communicable diseasemental health

Languages

English
DOI
10.21203/rs.2.19227/v1
Published Date
18 Dec 2019
Journal
Research Square
Issue Date
2019-12-18
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